My life with Obsessive-Compulsive Disorder has placed a strain on the very relationships that once gave way to warmth. It holds me close and tight and doesn’t let go until I am left feeling the brunt of its cruelty.
I suffer from disturbing, intrusive thoughts, over which I have no control. These intrusive thoughts can be cruel, and invade my brain throughout the day. With no warning. They threaten the very foundations in which make my life bearable – friendships and relationships.
These destructive thoughts hold me back from enjoying existence. They make me question who I am.
I feel there is something wrong with me.
I have OCD.
I know the shame that intrusive thoughts bring about. So, I understand that only one-third of the 500,000 OCD sufferers in Australia seek treatment. For a long time, I refused to discuss it with anyone, but it becomes overwhelming and too difficult to keep locked away in my brain.
OCD calls on the demons hiding in the most remote corners of my brain to come downstairs and ruin my optimistic outlook on life. They convince me that I’m a despicable human and a danger to myself and others.
I won’t discuss in detail the context of my thoughts, what I will say though is that they cause such immense grief, I often feel my stomach may very well expel from my body.
The thoughts come in tsunami-like episodes, getting worse as time moves on, leading to one of the most heartbreaking episodes of all.
It had been a long night. I had been locked away from the outside world for just over a week. One could call it a self-isolation of a brain, my brain. It had been occurring for months, years even, somewhat episodically, but this time, it was all too much. I couldn’t handle the strain my brain placed over me. I had called a few helplines who suggested going to see someone but little did they know I was already in the process of finding someone. But as it was approaching Christmas, the wait for an appointment was well over 3-4 months.
My friend and I had planned to meet up for dinner and dessert, however, my eyes, stained red from distress, gave way to crucial evidence. She had been there for me two years earlier when the thought of still being around in 2019 felt like a mere fantasy.
It wasn’t an ideal situation. I sat in my car for 15 minutes trying to calm myself down. Once I felt the air float back into my lungs, I escaped the confinements of my car and made my way to her work. The sun, in its slow process of setting, shone a light shade of pink throughout the plaza.
“Just keep looking at the sunset,” I thought to myself. “It’s going to be a new day soon and this will all be a distant and faint memory.”
When you’re about to panic or on the verge of crying, the best thing someone can do is ask “R U OK?”, but I’ve found that this causes the flood gates to burst open, leading to a tsunami of emotion. The tsunami releases all the negativity trapped inside, explosions and cascades of gasps and tears tearing through the silence of their response. This occurred that night as I waited in the empty plaza outside the department store. Waiting. Breathing. Silence.
“Hey!” she said.
“Shit,” I thought.
Her smile often brings joy and the warm fuzzies, but on this day I couldn’t help but feel an overwhelming army of joyless demons crush against my chest. The infection spread from my chest to my stomach as my hands started to tremble. I let out a nasty cry and fell into her arms.
She was the first person I told my thoughts to.
Everything spilt out in a rapid eruption of words and tears. I told her of the thoughts that caved away into the deepest parts of my brain, and how I had no control over them. These thoughts, intruding around my body as if on vacation refused to withdraw.
After 30 minutes of ugly crying, my friend thought it best that we call a mental health crisis helpline. Another 30 minutes went by. My ugly crying grew stronger and my friend performed her duty as a translator, relaying information onto the mental health officers.
I was too busy attempting to breathe. By 9:30 pm we were in the hospital’s mental health ward. Unfortunately, not my first time sitting in an emergency department due to mental health complications. What felt like a 30-minute wait turned into a 6-hour wait.
A lengthy couple of months ensued. I saw several mental health officers including a psychiatrist who put my mind at ease, informing me that these thoughts weren’t me. Asking me a very important question:
“If these thoughts, in any way, represented the type of person you were, then why would they cause you so much distress?” He said. “So much distress that it caused you to question your place on this earth.”
I finally had the answers, I was diagnosed with Obsessive-Compulsive Disorder.
It was a relief when I finally had an answer for the thoughts. These maleficent thoughts were so overwhelming that I questioned my place on this earth. And for the week leading up to that night, my brain spun into what felt like a never-ending cycle. Continuing to ask the same three questions:
Why are these thoughts in my head?
Why are they coming back with more ferocity than the last time?
Should I still be alive if I have these thoughts?
The truth is, at that time I wasn’t sure why I was having them; I didn’t realise that OCD could bring about such nasty thoughts. Thoughts that made me feel physically sick. It was as if a hand had made its way down my throat, stuck these ideas in my gut then withdrew in a hurry. Scurrying far away, leaving no evidence it was once there. It left doubt in the pit of my stomach. I asked myself – Am I this sick? Am I capable of these ideas? Is this me?
If these thoughts did in any way portray the kind of person I was, then in no way did I want them to be true. This is why that night I was in such distress. Once I was suffering from this “episode” it felt as though the thoughts would never end. With my previous episodes, I had managed to force the ideas to disappear after 2 or 3 days, but I couldn’t this time.
When I realized I had no control over them a wall of shame crashed into me. This was the moment I decided to lock myself away. Fortunately for me, I had already planned that dinner date with my friend. My stomach wanted to stay locked away, but my brain saved the day. My body activated the “Save Sarah Mode”, hoisting me up, out and into the car. On my way, I went.
Luckily for me, there are be people in my life I could and still to this day can trust. You can spill your guts to them, metaphorically that is.
Even if you feel like you are alone, stuck on a boat in the middle of the ocean, someone will eventually turn up, even if they are also stuck in the middle of the ocean, maybe in a dingy. Together you will form an unbreakable bond, forced together by the wildest of fears and thoughts and anxieties that crash against you like the wild, unpredictable waves they are.
My friend, that night, was my lifeboat.
There is this misconception that OCD only encompasses cleaning, organising, washing hands or turning light switches on and off. Now, even though these are common compulsions, it doesn’t represent everyone who has the misfortune of living with OCD. And for me, it made it difficult to speak up about my diagnoses.
Since experiencing this terrible uncontrollable episode, I have found peace. I am now able to open up to people regarding my OCD. I am able to accept that these thoughts aren’t me. And I am not able to control some thoughts that come my way.
If you or anyone you know require assistance in relation to distressing thoughts and/or Obsessive-Compulsive Disorder, please contact Lifeline on 13 11 14.
